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Basics of NUT Midline

What Causes NUT Midline Carcinoma


What Can Families Do


Therapies for NUT midline carcinoma have included surgery, radiation therapy, and chemotherapy. Patients typically have received surgery to remove as much of the disease as can be done safely. Often radiation therapy or chemotherapy is also given before or after surgery. A number of different chemotherapy medications have been used, either alone or in combination. As of yet, no single treatment regimen appears clearly superior to any other. Specific therapeutic strategies must result from decisions between patients and treating physicians depending on individual clinical circumstances.

The lack of a known effective treatment for this disease has motivated us to form this Registry. The enrollment of patients with NMC into the Registry will allow the evaluation of responses to different treatments, providing clues as to which treatment work most successfully. In the future, as a result of a better understanding of NMC, we hope that improved therapeutic options will emerge.

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